Journey of Faith, Hope and Love

OUR JOURNEY OR FAITH, HOPE and LOVE

I feel like our family was blessed with a second chance. in 2008, Holden was born extremely sick. He had heart defects, chronic lung disease, pulmonary hypertension and severe GI issues. At 10 weeks old he came home from the hospital on oxygen, a feeding pump and a heart monitor. During one of our many hospital visits doctors determined that he had pulmonary vein stenosis. They explained that it was inoperable and in most cases was fatal. They said they did not know if he had "two days, two weeks, two months, two years or two decades." Our world changed in that instant.

I prayed like I had never prayed before. I asked God for a miracle. I asked anyone who would listen...to pray for Holden. Even in the darkest of hours, I heard a voice telling me everything was going to be alright. It was that voice that gave me the faith and strength that I needed for myself, my family and my son. Today, Holden is 12 years old and is doing amazingly well. He is smart, kind and full of life! He loves lacrosse, basketball, video games and hanging out with his friends. He is our walking miracle.

I am in the process of writing a book about our journey and hope by sharing our story we can inspire other families facing challenges to hold onto their faith. Have faith in God. And, if not in God, have faith in something. Have Faith in yourself...or simply in that things WILL get better. Keep HOLDEN Faith!

Wednesday, August 7, 2013

Grateful for Kindergarten

Tomorrow Holden will start Kindergarten and I am full of emotions! On one hand I am incredibly grateful. And then, of course there is a part of me that wants to hold onto my little guy and not let him go. I’ve loved the time we’ve had together. But tomorrow things will change!


Fortunately change is not always a bad thing. There were doctors who cautioned us that Holden may never make it to Kindergarten. Other doctors said if he survived, that he would be on oxygen indefinitely. And then there were the doctors who said his conditions were complicated and they had no idea what his future would hold. Finally, the doctors who suggested we pray for a miracle.  It was a rough first couple of years, but I prayed like I never prayed before.  I begged God for a miracle. And little by little, things changed. Holden started doing things that many doctors were not sure he’d ever be able to do.

We had an appointment with Holden’s cardiologist last Thursday to review results from a recent echocardiogram. Despite my faith, these appointments always cause me anxiety because Holden is living with three pulmonary veins, instead of four like you and I. He also had pulmonary hypertension and a small hole in his heart. Early on, it seemed like echo results often identified additional problems and concerns. Fortunately (or miraculously) his body created collaterals to pump the blood from his heart to his lungs. Doctors have said that this is “un-chartered” territory and don’t know what the future holds. But Thursday, Holden’s cardiologist told us that he longer has pulmonary hypertension. His pulmonary pressures are finally normal. And the hole in his heart is practically closed. And the doctor feels good that as Holden grows, the collaterals will grow and keep up. It was amazing news!  

When Holden was just a couple weeks old and in the NICU, I bought a plush flower in the hospital gift shop. It reads “And the child grew, and the LORD blessed him.” Judges 13:24   That flower always sat above his hospital crib/bed and is still in his room today. I couldn’t help but think of that flower after our doctor’s visit. With growth has come health. Positive change.

So while I still find it painful to look back, taking a temporary peek into the past certainly helps me appreciate where we are now. It humbles me beyond belief. It helps me keep things in perspective. It helps me not take a single day for granted. And it helps me embrace change.

So I will put on a brave smile as Holden gets out of the car tomorrow morning and save my tears for after the door slams and my sweet kindergartener walks into his first day of elementary school. It is then that I can have my moment to break down understanding how truly blessed we are!


Acknowledging the past, living in the present and celebrating the future,

Christine

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